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Jan Hunter's avatar

Not an intensivist, but a severe septic shock survivor x2 with enough medical background to follow much of this article. My first episode was prolonged, starting in a community hospital where typical patient LOS was 3-4 days; I was there 6 weeks before being transferred (still comatose) to a university hospital. Fluid overload was one strategy to maintain desired MAP. This resulted in massive interstitial fluid accumulation such that I gained about 25 lbs in fluid weight and my skin “wept fluid” (according to both family and a few nursing notes). Dialysis was finally started at my daughter’s request, with significant improvement in reduction of edema within a few days.

But my point here is to please also consider long-term sequelae of your medical practices.

In my case, (1) massive edema from fluid overload made me more unstable, so pposition changes were minimal - only supine and semi side-lying for 6 weeks. When finally turned prone for a hail-Mary procedure by interventional radiology, a large quantity of very foul drainage came from my lungs. This clearance was the turning point for my survival (hospice had been on notice), but having that in my lungs for weeks also worsened interstitial scarring from ARDS. My PFT’s are stable, but with moderate lung damage - thankfully not severe.

And (2), arthritis LOVES edema. PT was not considered to mobilize fluid, elevate UE’s for drainage, use compression garments or provide ROM. Global joint changes followed. A stable scoliosis worsened by 50%; I am now fused from C4 to my sacrum, and C1-C3 are kyphotic. My knees degraded and have both had surgical replacements. My hands were frozen in abnormal alignment and have never fully regained function - this is perhaps (personally) my greatest impairment.

Why do I include my story here? Perhaps in hopes of skilled and caring intensivists considering potential unintended sequelae of their interventions, and possible mitigations along the way. In no way minimizing the heroic efforts that saved my life, balancing the massive fluids given for my septic shock hypotension with earlier dialysis, proning, and early physical therapy (essential with prolonged coma patients to initiate ROM, therapeutic positioning and compression garments) could have dramatically improved my post-critical illness morbidity and function.

Thank you for all you do!

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